Patrons: Bill Beaumont, Mark Lawrenson & Tisha Merry Reg Charity No: 512186

‘There’s something I’ve been dying to tell you’ – My Personal Advance Care Plan

Conference - Organ and tissue donation (3) Conference - patient Janet Pillinger (3) Conference - patient Janet Pillinger (2) Education - Dr Claire Capewell (3)Education - Debbie Bolton (5) Education - Debbie Bolton (2)

A new era for advance care planning

This year’s conference has been inspired by former patient, Max Neill, who developed a one page end of life care plan that clearly stated his wishes for his final months, days and hours for doctors, nurses and family to follow. He wanted his plan to be personal and to avoid some of the more clinically-led documents.

To create his plan, Max worked in conjunction with Helen Sanderson Associates who have pioneered similar so-called ‘one-page profiles’ for social care, education and healthcare organisations.

Dr Claire Capewell, Consultant in Palliative Medicine at Lancashire Teaching Hospitals NHS Foundation Trust, said: ‘When Max shared his concept with me, I thought it was fantastic. It’s not easy to have discussions about end of life plans but we know that having them increases the likelihood of the wishes being known and respected. Max’s plan is a beautiful example of putting on paper what is important to him and his family and how they can be supported.

‘I have felt inspired by Max’s plan to look at my current practices to see how his ideas can be developed to benefit others.’

Sarah Russell, Head of Research and Clinical Innovation at Hospice UK, said they were looking at ways to roll the service out nationally.

‘We are going to be taking Max’s concept forward and providing information to health service providers throughout Britain about how to offer this as an option. The idea [behind one-page profiles] is to help remind healthcare professionals that patients are also people.’
To read more about Max’s story click here

Conference Agenda

09:00 – 09:30 REFRESHMENTS

09:30 – 09:45 Opening Remarks
Dr Claire Capewell – Community Consultant in Palliative Medicine, LTHTR

09:45 – 10:30 Advance Care Planning – Whose Agenda Is It Anyway?
Sarah Russell – Head of Research and Clinical Innovation, Hospice UK

10:30 – 11:00 Legal Matters: Planning for the Future
Cathy MacCracken – Partner, Birchall Blackburn Law

11:00 – 11:15 Question and Answer Session

11:15 – 11:45 REFRESHMENTS

11:45 – 12:15 What can we learn from person-centred practices in the Learning Disabilities sector?
Helen Sanderson – CEO, Helen Sanderson Associates

12:15 – 12:45 Patient Perspective: The One Page Profile
Janet Pillinger

12:45 – 13:00 Question and Answer Session

13:00 – 13:45 LUNCH

13:45 – 14:15 Organ Donation – A Parent’s Experience
Helen Bradley – Bereavement and Donation Team LTHTR
Lisa Grant – Parent

14:15 – 16:15 WORSHOPS

1. Different ways to have conversations about the end of life and using Max’s one page profile
Helen Sanderson – CEO, Helen Sanderson Associates
Sarah Russell – Head of Research and Clinical Innovation, Hospice UK

2. Starting the conversation
Debbie Bolton – Lead Clinical Educator, St Catherine’s Hospice
Linda Gregory – CNS, St Catherine’s Hospice

3. Complex advance care planning – interactive case study
Dr Claire Capewell – Community Consultant in Palliative Medicine, LTHTR

Date: Friday 21st October
Time: 09:30 to 16:30
Venue: St Catherine’s Hospice, Lostock Hall, PR5 5XU
Tickets: £50 (includes lunch and all refreshments)

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